Moebius-Support.org.uk
- Information on a rare genetic condition, issues for children and adults, and a resource list.
- http://www.alex-b.net/moebius

Genetic Interest Group
- Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
- http://www.gig.org.uk/

PiXiE
- Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
- http://www.pxe.org.uk/

The Williams Syndrome Foundation
- Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
- http://www.williams-syndrome.org.uk/

The Alkaptonuria Society
- Information about this genetic metabolic disorder for patients and professionals. Includes an FAQ, and a registration page for sufferers.
- http://www.alkaptonuria.info/