International Rett Syndrome Association (IREA)
- The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children w
- http://www.rettsyndrome.org/

The Sarah Varon Foundation for Rett Research
- A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease.
- http://www.sarahvaronfoundation.org/

Rett Syndrome Association of Ireland
- A support group for the victims of RS and their families. Read about the organization and the disorder.
- http://www.rettsyndromeireland.com

National Institutes of Health
- Information in Rett Syndrome, treatment and prognosis.
- http://www.ninds.nih.gov/health_and_medical/disorders/rett_doc.htm

Rett Syndrome Fact Sheet
- An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
- http://www.ninds.nih.gov/health_and_medical/pubs/rett.htm

Rett Syndrome
- The Autism Research Institute distributes an information packet on Rett Syndrome.
- http://www.autism.org/rett.html

Rett Syndrome Association UK
- National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
- http://www.rettsyndrome.org.uk/

Rett Angels
- Rett Syndrome forum and online support group sharing personal stories and information.
- http://www.rettangels.org