Dylan Samuel Freeman - Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs. - http://www.dylanfreeman.20m.com
Family Village / Library / Leukodystrophy - Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease. - http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
Leukodystrophy - A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. - http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
MCW HealthLink - Alexander Disease - Information sheet from the Medical College of Wisconsin. - http://healthlink.mcw.edu/article/921383447.html
Alexander Disease - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. - http://www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
Aicardi-Goutieres Syndrome - News, descriptions, contacts, and other information concerning this leukodystrophy. - http://www.aicardi-goutieres.com
United Leukodystrophy Foundation - Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health. - http://www.ulf.org/
Joe Johnson and the Call Again Soon BBS - Directed at making life better for people affected by Leukodystrophy and those who know and love them. - http://www.joejohnson.net/