Von Hippel-Lindau Disease
- Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/disorders/von_hippel_lindau/von_hippel_lindau.htm

Family Village
- Links to chat rooms, web sites and information about Von Hippel Lindau's disease.
- http://www.familyvillage.wisc.edu/lib_vonh.htm

Radiology: Von Hippel Lindau Disease
- Genetic, clinical and imaging features from the NIH.
- http://www.cc.nih.gov/ccc/papers/vonhip/toc.html

Von Hippel-Lindau Family Alliance
- Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]
- http://www.vhl.org/