Katie's Journey
- Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
- http://www.katiesjourney.50megs.com

NORD: Shwachman Syndrome
- Offers a general discussion, the synonyms and further resources.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Shwachman%20Syndrome

Shwachman-Diamond Syndrome Family/Friends
- An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
- http://groups.yahoo.com/group/shwachmansyndrome/

Shwachman-Diamond America
- Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
- http://shwachmandiamondamerica.org

Shwachman-Diamond Syndrome International
- Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
- http://www.shwachman-diamond.org/

Shwachman Syndrome
- A mothers story to diagnose this disorder before a team of doctors could.
- http://www.chariot.net.au/~dna/angelica.html

The CaF Directory
- A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
- http://www.cafamily.org.uk/Direct/s24.html