NORD: Ectodermal Dysplasias - Offers synonyms, a general discussion and resources. - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias
Ectodermal Dysplasia Society - Information about the organization as well as the ED condition. Includes links, news articles and contact details. - http://www.ectodermaldysplasia.org/
National Foundation for Ectodermal Dysplasia - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services. - http://www.nfed.org/
The Andy Fund - Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene. - http://www.andy.org.mx
The CaF Directory - Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing. - http://www.cafamily.org.uk/Direct/e14.html