Aled Thomas Griffiths - A collection of information, events and pictures detailing the life story of Aled Thomas Griffiths. - http://www.aledgriffiths.co.uk/
Zoe Lambert - Personal account of this condition, and surgery to receive titanium rib implants. - http://www.zoelambert.com
Ryan's Life - Story of Ryan Sherman detailing events throughout his life, from birth to present day. - http://www.ryanslife.org/
Schmidt Family Blog - Online journal about daily life with an affected child. - http://the-family-schmidt.blogspot.com/
Leslie Sue Large - Memorial website for a little girl, who became an angel at the age of 14 months due to a congenital heart defect. - http://www.tiffwebs.com/leslie.html
Hannah's Story - Story of a little girl, detailing this condition as well as heart conditions. - http://tchin.org/portraits/hannah-1.htm
Benjamin Rockey - Journal detailing the events of a little boy with this condition. - http://www.caringbridge.org/visit/benjaminrockey
Lily Hansen - Information keeping friends and family updated on her progress. - http://www.caringbridge.org/visit/lilyhansen
Alison Green - Journal based on her life, detailing events throughout her life. - http://www.caringbridge.org/pa/alisonpgreen/index.htm
Baby Rose - Dedicated life story, detailing all events from birth onwards. - http://www.rosebolduc.com/