Myotubular Myopathy Resource Group
- Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories.
- http://www.mtmrg.org/

Advancement of Research for Myopathies
- A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board.
- http://www.hibm.org

Familial Desminopathy
- Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe.
- http://www.desminopathy.plus.com

Myopathy
- Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
- http://www.ninds.nih.gov/health_and_medical/disorders/myopathy.htm

NINDS: Inclusion Body Myositis
- Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/health_and_medical/disorders/inclusion_doc.htm

Periodic Paralyses
- Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- http://www.ninds.nih.gov/health_and_medical/disorders/periodic_doc.htm

Nemaline Myopathy
- Information and contacts regarding Nemaline Myopathy
- http://www.davidmcd.freeuk.com/

Myopathy and neuromuscular junction disorders
- Detailed information on some of the muscle diseases.
- http://www.neuro.wustl.edu/neuromuscular/maltbrain.html

Multicore Myopathy
- Offers an informational and support site for all myopathies.
- http://home.cogeco.ca/~famadio/