Spina Bifida and Hydrocephalus Association of Ontario
- Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs.
- http://www.sbhao.on.ca

The Scottish Spina Bifida Association
- Contact information for national office, family support services and fundraising.
- http://www.ssba.org.uk/

Spina Bifida and Hydrocephalus Association of Canada
- Information, current news, research grants and discussion forum. National organization.
- http://www.sbhac.ca/

Australian Spina Bifida and Hydrocephalus Association
- National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
- http://www.asbha.org.au

International Federation for Spina Bifida and Hydrocephalus
- World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.
- http://www.ifglobal.org/

Association for Spina Bifida and Hydrocephalus
- UK website containing a large selection of informational articles and provides information about current research projects being funded.
- http://www.asbah.org

Spina Bifida Association of America
- Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.
- http://www.sbaa.org/