Dutch PTC Support Group
- Viewable in both Dutch and English, this site is maintained by the Dutch PTC Support Group. Subscribe to the monthly newsletter, read personal PTC stories and an informal survey conducted by the managers of this group of the members; along with the survey
- http://www.pseudotumorcerebri.nl/

care2 BIH group
- A support and educational group for those diagnosed with B.I.H, their families and friends; also for compassionate souls who wish to learn more and help others.
- http://www.care2.com/c2c/group/BIH

Living with Pseudotumor Cerebri
- Includes an online book called "The PTC Primer," an explanation of pseudotumor cerebri, newsletters, sign-up for a patient database, and links to related sites and support groups.
- http://www.findmemyhouse.com/ptc/index.htm

Yahoo! Groups: PTC-Support-Group
- This is an email support group for people who have Pseudotumor Cerebri. A chat room is also provided for additional support.
- http://groups.yahoo.com/group/ptc-support-group/?yguid=88510150

Yahoo! Groups : PTC
- This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encouraged to participate.
- http://groups.yahoo.com/group/ptc/

Benign Intracranial Hypertension
- A UK based site relaying a personal experience, with symptoms, possible causes, and diagnosis. Message boards are included to connect with others living with BIH.
- http://www.mjmoore.co.uk/bih/