McKay Orthopaedic Research Laboratory - Summaries of current research projects at the University of Pennsylvania. - http://www.uphs.upenn.edu/orl/research/fop/
SFGate - San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients. - http://sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/05/31/BONES.TMP