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  Ehlers-Danlos Syndrome (29)

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Featured Websites in this category
http://www.ednf.org/
Featured Site Ehlers-Danlos National Foundation Open in a new browser windowLink Details
- American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
- http://www.ednf.org/

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Regular Websites in this category

EDS Living - a Journal Open in a new windowLink Details
- Learn what it's like to live with EDS for this woman and her children by following her online journal.
- http://edsliving.livejournal.com/

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The Swedish Ehlers-Danlos Syndrome National Association Open in a new windowLink Details
- The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
- http://www.ehlers-danlos.se/indexEng.html

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Ehlers-Danlos National Foundation - Michiana Branch Open in a new windowLink Details
- Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
- http://smackdabdesign.com/mednf/

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"China Doll" Syndrome Open in a new windowLink Details
- Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
- http://moondancer.150m.com/ehlers.html

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eMedicine - Ehlers-Danlos Syndrome Open in a new windowLink Details
- Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
- http://www.emedicine.com/derm/topic696.htm

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Sandy Simmons' Connective Tissue Disorder Site Open in a new windowLink Details
- Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
- http://www.ctds.info/

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Oral Manifestations of Ehlers-Danlos Syndrome Open in a new windowLink Details
- EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
- http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html

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Hypermobility Portal Open in a new windowLink Details
- Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
- http://hypermobility.objectis.net/

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Diagnose-Me: Treatments: Prolotherapy Open in a new windowLink Details
- Some EDS patients have obtained excellent results with prolotherapy treatments.
- http://www.diagnose-me.com/treat/T85233.html

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Ehlers-Danlos Syndrome Medical Information Open in a new windowLink Details
- Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
- http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm

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Department of Pathology Open in a new windowLink Details
- Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
- http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlos.php

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Coalition for Heritable Disorders of Connective Tissue Open in a new windowLink Details
- Research organization for genetic connective tissue disorders.
- http://www.chdct.org

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Arthritis Insight-EDS Tips for Surgery Open in a new windowLink Details
- If you or a family member with EDS needs surgery, read this and share it with your doctor.
- http://arthritisinsight.com/medical/surgery/eds.html

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Hypermobility Forum Open in a new windowLink Details
- This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
- http://www.marge.com/hypermobility/

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HealthWise: Ehlers Danlos Syndrome Open in a new windowLink Details
- Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
- http://hw.healthdialog.com/kbase/nord/nord240.htm

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Electronic Textbook of Hand Surgery Open in a new windowLink Details
- Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
- http://www.eatonhand.com

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Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome Open in a new windowLink Details
- Symptoms, diagnosis and treatment of the condition.
- http://www.arthritis.org/conditions/diseasecenter/eds.asp

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The Canadian Ehlers-Danlos Association Open in a new windowLink Details
- Working together to provide assistance, support and resources for people living with this rare genetic disorder.
- http://www.ehlersdanlos.ca/

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The Hypermobility Syndrome Association Open in a new windowLink Details
- HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
- http://www.hypermobility.org/

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American Massage Therapy Association - The Hypermobile Client/Therapist Open in a new windowLink Details
- Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
- http://www.amtamassage.org/journal/olcott2.html

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NORD: Ehlers-Danlos Syndrome Open in a new windowLink Details
- Information about EDS from the National Organization for Rare Disorders.
- http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome

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EDS Today Open in a new windowLink Details
- The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
- http://www.edstoday.org/

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Ehlers-Danlos Syndrome Information Open in a new windowLink Details
- A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
- http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01

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Ehlers Danlos Foundation of New Zealand Open in a new windowLink Details
- Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
- http://www.edfnz.org.nz

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Ehlers-Danlos Syndrome Support Group Open in a new windowLink Details
- This site offers extensive information for patients and doctors, plus links.
- http://www.ehlers-danlos.org

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Ehlers-Danlos Hope Open in a new windowLink Details
- A Syrian patient gives a personal plea for better medical support and research.
- http://ehler.8m.com

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