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Barth Syndrome Foundation

  Link Details for: Barth Syndrome Foundation
Link Title: Barth Syndrome Foundation Open in a new window
Link URL: http://www.barthsyndrome.org
Link Details: Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
Category: Top : Health : Conditions_and_Diseases : Rare_Disorders : Barth_Syndrome
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Barth Syndrome Foundation